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Our Mission

The SATB2 Gene Foundation, Inc. was established to enrich the lives of individuals with SATB2-associated syndrome, including those diagnosed with the condition and their families, through support, research, and education. 

Our mission will be met by:

  • Raising awareness about the characteristics of SATB2-associated syndrome

  • Providing support to families

  • Supporting research in a wide range of issues related to SATB2-associated syndrome


We are pleased to share our 2019 - 2021 Strategic Plan that will help serve as our roadmap.

SATB2 Gene Foundation, Inc. Board of Directors

Allison Kaczenski, Founder and President
Aisling Caffrey, Vice President
Cassandra Jeyaram, Secretary Nicole Johnson, SATB2 parent representative
Adrienne Waddey, Treasurer

SATB2 Gene Foundation Medical and Scientific Advisory Board

Dr. Yuri Zarate, University of Arkansas for Medical Services and Arkansas Children’s Hospital (USA) Dr. Meena Balasubramanian MBBS, DCH, FRCPCH, MD, Sheffield Children’s Hospital (UK) Dr. Jennifer Fish, University of Massachusetts Lowell (USA) Drs. Barber Tinselboer, ‘s Heeren Loo (Netherlands) Ashlen Thomason, Ph.D., CCC-SLP, Arkansas Children’s Hospital (USA)

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