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Our Mission

The SATB2 Gene Foundation, Inc. was established to enrich the lives of individuals with SATB2-associated syndrome, including those diagnosed with the condition and their families, through support, research, and education. 

Our mission will be met by:

  • Raising awareness about the characteristics of SATB2-associated syndrome
  • Providing support to families
  • Supporting research in a wide range of issues related to SATB2-associated syndrome


SATB2 Gene Foundation, Inc. Board of Directors

Allison Kaczenski, Founder and President
Aisling Caffrey, Vice President
Cassandra Jeyaram, Secretary
Adrienne Waddey, Treasurer

SATB2 Gene Foundation Scientific and Medical Advisory Board

Currently under development