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Our Mission

The SATB2 Gene Foundation, Inc. was established to enrich the lives of individuals with SATB2-associated syndrome, including those diagnosed with the condition and their families, through support, research, and education. 

Our mission will be met by:

  • Raising awareness about the characteristics of SATB2-associated syndrome
  • Providing support to families
  • Supporting research in a wide range of issues related to SATB2-associated syndrome


SATB2 Gene Foundation, Inc. Board of Directors

Allison Kaczenski, Founder and President
Aisling Caffrey, Vice President
Cassandra Jeyaram, Secretary
Adrienne Waddey, Treasurer