SATB2-associated syndrome Multidisciplinary Clinic
2020 DATES ANNOUNCED
June 2-4 and October 6-8
Arkansas Children’s Hospital; Little Rock, Arkansas (USA)
Arkansas Children’s hospital is pleased to announce that starting June 2020, the SATB2-associated syndrome clinic will be offered quarterly.
Arkansas Children’s Hospital (ACH) hosts the only dedicated multidisciplinary clinic for SAS in the United States. Participants can anticipate to undergo a comprehensive evaluation by ACH’s experienced SATB2 team.
Spaces are limited and will be on a first come, first serve basis, with priority being given to new patients not previously seen in an official SATB2 clinic.
Appointments will include visits with Dr. Yuri Zarate, Genetics; ENT; Speech; Dental; Psychology; Orthodontics; and Audiology (as needed).
To be placed on the list or for more information, for either 2020 SAS Clinic, please contact Katie Bosanko, SATB2 Clinic Coordinator with ACH at firstname.lastname@example.org. Arkansas Children’s Hospital will contact families to gather the necessary paperwork to verify insurance coverage. Confirmation of diagnosis will be required if not previously submitted.
ACH will run an insurance pre-authorization for each family. Families will be individually responsible for any financial costs not covered by medical insurance, and will also be responsible for all travel costs. If insurance does not cover the visit and procedures, or only partially covers the visit and procedures, families will be fully responsible for those costs. Families will have the option of cancelling the visit if the costs are higher than they can afford after completion of insurance pre-authorization.
For more information, please contact:
Katie Bosanko, MS, CGC
501-364-4057 or email@example.com
The SATB2 Gene Foundation will review the availability of travel stipends to help assist families with travel expenses. Details will be posted here by February 2020 on the availability.