This is a journey and we are stronger with each other.  Meet some of our families.  

We were privileged to have Chris Ulmer, from Special Books by Special Kids, attend our first ever SATB2-associated syndrome conference in 2017.  He met with all of the families attending the conference, and also did several interviews.  We are so thankful to Chris for his kindness and compassion, and for helping us raise awareness about SATB2-associated syndrome as seen in the below videos. 

Parent blog resources  

We have some amazing moms who blog about SATB2-associated syndrome.  Please visit their blogs to learn more about our daily life caring for individuals with SATB2-associated syndrome.   

https://satb2associatedsyndrome.blogspot.com/

https://satb2mom.wordpress.com/

 

a few articles written by parents 

We also have some amazing parents who have written articles that we hope you will find helpful for wherever you are on your journey.  

The Mighty:  Why I'm No Longer Scared to be a Special Needs Parent

The Mighty: Moving Through Grief as a Dad of a Son with a Disability

The Mighty: What I Wish I Knew When My Daughter was Diagnosed with SATB2 Syndrome

 

Featured sas families

Click here to read more about Daniel and Joseph from Scotland