SATB2 Information Sheet for Families and Physicians

 Full download available below 

Full download available below 


Download the satb2 information sheets

We are excited to share these official information sheets about SATB2-associated syndrome.   

Families - Download this version as a resource to share with your clinical team, including your pediatrician and physician specialists, Speech-Language Pathologist, Occupational Therapist, Physical Therapist, Board Certified Behavior Analyst, and others involved in the care of your family member.  

Physicians, therapists, and clinicians -  Download this version to see the common features, information about diagnosing the condition, as well as recommended evaluations and treatments.  

The creation of these information sheets was made possible by a generous grant which we received.  Part of the grant is to track where this information is shared.  Please take a moment to let us know who you are sharing this with (Your name, your email address, Name of Physician or Medical Facility, specialty, and location) via the form field below or by emailing    

These are also available in the following languages.  Additional languages are being added, so please check back often.  

Dutch: Patients & Families                                 Dutch: Clinicians & Physicians

French: Patients & Families                                 French: Clinicians & Physicians

German: Patients & Families                               German: Clinicians & Physicians 

Spanish: Patients & Families                                Spanish: Clinicians & Physicians

Additional languages being developed:

Arabic                  Greek                 Hebrew         Hindi             Italian 

Japanese               Norwegian         Polish            Portuguese      Russian 

Simple Chinese    Swedish  

Did you share these information sheets with your pediatrician or pediatric specialists, other clinicians and therapists, local health agency, or other patient support groups?  Please let us know about it by sending us their name, specialty and location!  We appreciate you taking the time to help us track this important information as we raise awareness about SATB2-associated syndrome and increase everyone’s understanding of the condition.

Name *