UK 3rd Annual satb2-Associated syndrome Family Conference
Sunday, 7th July 2019
11am till 4pm
Join the 3rd Annual SATB2-associated syndrome UK Family Conference supported by the SATB2 Gene Foundation. We will be joined once again by our leading UK geneticist Meena Balasubramian who will be running a National SATB2 MDT Clinic Workshop.
We are very well aware of how our children need a one-stop clinic where all their needs can be met but need to establish what the priorities are and how we can go about it within the NHS set-up. Dr Balasubramanian has been setting this clinic up at Sheffield Children’s Hospital for the last couple of years but there is still plenty of work to be done to establish this as a multi-disciplinary clinic. She would like to meet with UK families during the conference to identify these priorities, what the barriers are to achieving them and how these can be overcome.
The psychologists team from FIND (Further inform Neurogenetic disorders) who have been running the SATB2-Associated Syndrome Behavioral Study will be able to provide feedback on their comprehensive findings from the study. This talk will recorded and will be made available.
They will also be holding individual clinics for parents who wish to discuss any specific behaviour issues. Appointments can be made on arrival.
Please note that no food can be purchased at the centre, although there is a cafe available on site with facilities for preparing and warming food.
Teas and coffees will be available but parents are asked to provide their own food.
We look forward to seeing as many of you as possible.
For more information please email MariaSATB2uk@gmail.com
Please note online registration is closed. However everyone is still welcome to attend. We look forward to seeing you on Sunday the 7th!